Owl
Hi all – I wrote up an update over the weekend but had technical challenges adding photos on my phone. First off, we wanted to share with you Sally’s new logo, which incorporates an owl and is now on this blog and her Facebook page. Sally has become identified with owls, which has been totally […]
Cycle 5 – Mixed Lineage Leukemia
Hi all – tomorrow Sally will begin Cycle 5 of treatment where she will receive her bi-monthly intrathecal dose of chemo into her spine. This is also when they will pull her marrow sample to test and check for relapse, so Nicole and I will be holding our breath for the next 7-10 days. She […]
2013
Hi all – if you aren’t able to follow Sally’s Facebook page, I just want to quickly recap the last couple days. On Sunday morning, Nicole brought Sally into Memorial Sloan-Kettering with a 102 degree fever and after she threw up a couple times. She was given an antibiotic and sent home, however on the […]
Christmas
Hi all – We haven’t sent an update in a week, although we’ve tried to post photos to Sally’s Facebook page throughout that time. As hoped, Memorial Sloan-Kettering was able to arrange for us to start Sally’s three-day chemo treatment on Sunday which allowed us to celebrate Christmas at home. Sunday was uneventful, Sally received […]
Parent.com Article
Hi all – we’re on day two of three here at Memorial Sloan Kettering, officially halfway through our Christmas week treatment. Just wanted to share this article published today over on Parent.com about our family keeping the Christmas spirit strong despite Sally’s cancer and undergoing treatment this week. Special thanks to Joe DeProspero for sharing […]
Red Devil & Christmas
Hi all – Sally has had a very good week, she’s really on the move getting around on her tushy. In addition, she’s taken on a new hobby – dancing. If you haven’t seen, here is a video we shared on Facebook this week. Sally never watches TV, she doesn’t have interest in it. However, […]
Overall, A Good Day
Hi all – we had a good day today, much needed after a string of weeks with challenges. First off, Thomas is back to his old self after having the flu. As last week progressed, he improved each day and finally returned to school on Friday. We had a scare last night when William woke […]
The Flu
Hi all – I’m writing this on the subway so please forgive typos. On Sunday night Nicole mentioned that Thomas had a 103 temperature, and that we had him wearing a mask all day. Yesterday morning Nicole took Sally into Sloan-Kettering and I took Thomas, still with fever, into his doctor whom we had only […]
Rectal Mucositis
Hi all – Nicole had to bring Sally into Memorial Sloan-Kettering last night. I received a call from her late yesterday afternoon that Sally was having hourly bowel movements, and the last few had blood in her stool. Her tushy was very raw, to the point where she would wince and scream in pain while […]
First Day Home
Hi all – As you know, we were able to bring Sally home around 6pm last night. We learned yesterday morning that her counts had skyrocketed over the previous 24 hours, so was well enough to leave. The only issue left was the pain she was in. Morphine works great for Sally through the IV, […]