Home, the Boys

Home, the Boys

Hi all – just wanted to drop a quick note that Sally was released on Saturday night after tests we were waiting on came back negative. Before leaving, Nurse Tracy gave us a lesson on how to give Sally a dose of emergency anti-seizure meds should she suffer a seizure of longer than 5 minutes, […]

Tests

Tests

Hi all – after a busy day of tests for Nicole yesterday and a busy work day for me (which I was grateful for the distraction), we were able to connect last night. The latest: – Sally was miserable early yesterday most likely due to not being able to take in fluids/breast milk prior to […]

Seizures

Seizures

Hi all – we planned on writing a followup post this week after Sally was released from the hospital last week with an E-coli infection in her central line. We’ve been going back and forth with the team all week about next steps. However, last night we had to rush Sally into the hospital as […]

Admitted - Line Infection #2

Admitted – Line Infection #2

Hello all – we know a lot of folks don’t use Facebook, where we post most updates on Sally, so just wanted to drop a quick blog post about Sally being admitted today for a bacterial infection in her central line. We had to bring her in to get checked out yesterday after she spiked […]

Rough Start to Year 2

Rough Start to Year 2

Hi all – Nicole and I realized that it has been awhile since we’ve provided an update on Sally’s treatment. Looking back, it’s been over a month, before this current cycle we’re currently about to conclude. Sorry about that, our lives have been crazy to say the least. We continued to take advantage of the […]

#EmpireGoGold

#EmpireGoGold

Hi all – We are long overdue for an update on Sally, she spent 48 hours admitted this week with what turned out to be an e-coli infection on her central line. We have to give her two weeks of strong antibiotics in order to keep her home. When Nicole and I actually have some […]

Tune into Fox 5 In NYC Tonight

Tune into Fox 5 In NYC Tonight

All – For those in NYC, please tune into Fox 5 News tonight from 5-6pm. Earlier today Nicole, Sally and I along with other parents were¬†¬†interviewed for a story on the Empire State Building declining an application to turn its lights gold one night in September, Childhood Cancer Awareness Month. The ESB claims that it […]

We visited friends at a beach club nearby who have a cabana. It's the closest we could get to going to the beach and was a very relaxing day for us.

Year 2

Hi all – On July 15th, we hit our one year milestone of Sally’s treatment. Achieving remission was our first big milestone, getting Sally through her first year is the second one. This week we sat down with Dr. Steinherz, the senior doctor on Sally’s Leukemia Team, a man who has been treating not only […]

Cycle 8 & Celiac

Cycle 8 & Celiac

Hi everybody – We realized we haven’t written in a few weeks, mostly because we’ve been getting Sally through the side effects of the chemo from Cycle 8. We had been told that we would be skipping the oral chemo that always knocks her counts down and sets off a chain reaction of side effects […]

Father's Day

Father’s Day

  Hi all – Today is Father’s Day, I can’t tell you how happy it makes me to have all five of us home together, I am in a jovial mood today, Sally and I got out for a walk and Daddy/Sally coffee date yesterday. I’ve noticed more people giving her questioning looks, my first […]