Another Broken Leg

Another Broken Leg

Hi all – On New Year’s Eve, Sally returned to the more intense chemo plan that she was on before the seizures she suffered in October. Our whole family spent the day at the hospital, getting there at the crack of dawn so Sally could undergo her spinal tap of chemo and have a bone […]

Return to Intensive Treatment

Return to Intensive Treatment

Hi all – We’ve been getting a lot of questions about how Sally is doing, so wanted to provide an update. Sally’s cast came off the week before last when we found out that the staff who remove casts can only do so on Thursdays, which meant she would have had it on until the […]

Goal: Enjoy the Holidays

Goal: Enjoy the Holidays

Hi all – Sally has had a good week since we last wrote. She has adjusted really well to having a cast, showing off her tenacity by learning to skooch around our home despite it. She started off being able to move a few feet the first couple days, but by the weekend was going […]

Broken Leg

Broken Leg

Hi all – As you probably surmised from the title, Sally has suffered a broken leg. We were visiting family on Sunday night where Sally managed to climb a small set of stairs for the first time. It was a huge achievement for her and were so proud. While climbing again, she all of a […]

Maintenance II, Surgery

Maintenance II, Surgery

Hi all – As discussed in our last blog, Sally began the temporary less intensive chemo plan this month. We had concerns about how her body would react to the change, so far things have been going well. Since the switch, Sally has had a ton of energy, she’s been extremely playful and all over […]

A Big Decision

A Big Decision

Hi all – Yesterday, Nicole and I had to make the kind of big (and scary) decisions with Sally’s treatment that we haven’t had to make since the early days of treatment. One of those decisions that we hope we never have to revisit or feel regret about one day. This blog post is to […]

Home, the Boys

Home, the Boys

Hi all – just wanted to drop a quick note that Sally was released on Saturday night after tests we were waiting on came back negative. Before leaving, Nurse Tracy gave us a lesson on how to give Sally a dose of emergency anti-seizure meds should she suffer a seizure of longer than 5 minutes, […]

Tests

Tests

Hi all – after a busy day of tests for Nicole yesterday and a busy work day for me (which I was grateful for the distraction), we were able to connect last night. The latest: – Sally was miserable early yesterday most likely due to not being able to take in fluids/breast milk prior to […]

Seizures

Seizures

Hi all – we planned on writing a followup post this week after Sally was released from the hospital last week with an E-coli infection in her central line. We’ve been going back and forth with the team all week about next steps. However, last night we had to rush Sally into the hospital as […]

Admitted - Line Infection #2

Admitted – Line Infection #2

Hello all – we know a lot of folks don’t use Facebook, where we post most updates on Sally, so just wanted to drop a quick blog post about Sally being admitted today for a bacterial infection in her central line. We had to bring her in to get checked out yesterday after she spiked […]