#EmpireGoGold

#EmpireGoGold

Hi all – We are long overdue for an update on Sally, she spent 48 hours admitted this week with what turned out to be an e-coli infection on her central line. We have to give her two weeks of strong antibiotics in order to keep her home. When Nicole and I actually have some […]

Tune into Fox 5 In NYC Tonight

Tune into Fox 5 In NYC Tonight

All – For those in NYC, please tune into Fox 5 News tonight from 5-6pm. Earlier today Nicole, Sally and I along with other parents were  interviewed for a story on the Empire State Building declining an application to turn its lights gold one night in September, Childhood Cancer Awareness Month. The ESB claims that it […]

We visited friends at a beach club nearby who have a cabana. It's the closest we could get to going to the beach and was a very relaxing day for us.

Year 2

Hi all – On July 15th, we hit our one year milestone of Sally’s treatment. Achieving remission was our first big milestone, getting Sally through her first year is the second one. This week we sat down with Dr. Steinherz, the senior doctor on Sally’s Leukemia Team, a man who has been treating not only […]

Cycle 8 & Celiac

Cycle 8 & Celiac

Hi everybody – We realized we haven’t written in a few weeks, mostly because we’ve been getting Sally through the side effects of the chemo from Cycle 8. We had been told that we would be skipping the oral chemo that always knocks her counts down and sets off a chain reaction of side effects […]

Father's Day

Father’s Day

  Hi all – Today is Father’s Day, I can’t tell you how happy it makes me to have all five of us home together, I am in a jovial mood today, Sally and I got out for a walk and Daddy/Sally coffee date yesterday. I’ve noticed more people giving her questioning looks, my first […]

A Year Gone By

A Year Gone By

Hi all – A year ago this morning, our lives began to change forever. Sally had been sick since the day before with a fever of 103, Nicole and I took turns staying up all night with her. By morning, she was limp and pale as a ghost. We agreed that Nicole would head into […]

Sally in the NY Daily News

Hi all – Sally was featured in a full page color article in this morning’s NY Daily News. We love the article as it brings attention to pediatric cancer, Memorial Sloan Kettering’s unique way of treating it and Infant Leukemia which receives very little press. You can read it by clicking here. Please keep Sally in […]

End of Cycle 7

End of Cycle 7

Hi all – It’s been awhile since we last posted a blog update, there’s a lot to cover so we’re going to let some pictures below tell the story of what we’ve been up to. Overall, Sally did well with cycle seven, finishing up with three days of treatment this past week. This is our […]

Mother's Day

Mother’s Day

Hi everyone – Mother’s Day morning was wonderful.  Most important we were all under one roof! The best present ever! The bonus, I was able to sleep in a bit and awoke to our ongoing tradition of breakfast in bed accompanied with plants and handmade presents. I read several posts, articles, and viewed photos of […]

May

May

Hi all – It’s been two weeks since we’ve written, last time we were entering into the new cycle and concerned about what it would bring. Last Monday Sally had her intrathecal chemo, the one where they inject it directly into her spine. This is because chemo can’t get into the spine any other way, […]