Sally with Dr. Kobos just after we thanked her for saving our little girl's life.

The End of Infant Leukemia Treatment

Hi all – Over two years ago, and several times in between, we didn’t know if we’d ever get to write this blog post. Sally had just been diagnosed with a rare form of Infant Leukemia that had a dismal survival rate. Today, here we are, Sally just received her last scheduled dose of chemo, […]

Sally Takes Off!!!

Hello all! Sally is almost three years old, and due to the effects of two years of harsh chemo for her Infant Leukemia, she’s never been able to walk. Three leg fractures from weakened bones, neuropathy, seizures and severe GI issues have held her back. That is, until today. Watch our little girl finally take […]

A Letter From a Childhood Cancer Survivor

A Letter From a Childhood Cancer Survivor

Hi everybody, It’s been a long time since I’ve written. As Sally’s Infant Leukemia treatment winds down, there is a message we received on Sally’s Facebook page a few months ago that a day hasn’t passed where I’ve thought about it. I’ve included it below, completely unedited, with Lauren’s permission: “I saw your post today […]

?

Two Years In – High Anxiety

Hi all – Over the¬†weekend we passed our two year anniversary of the day Sally first got sick. Although we were formally diagnosed on July 15th, Sally first showed symptoms that brought us to the ER on June 12th of 2013. From that moment on life was never the same for our family, and never […]

Cabana Girl

Cabana Girl

Hello all – Yes, we know it’s been awhile again since our last update. All was actually pretty quiet up until the last few weeks, so didn’t have much to report on. That all changed three weeks ago when Sally was admitted with what appeared to be an infection on the skin around her central […]

Emerging From Our Cave

Emerging From Our Cave

Hi all – We realize it’s been about 6 weeks since our last update. To be honest, there really hasn’t been anything major to update, which is actually a very good thing. Last week we kicked off Cycle 11 with Sally receiving a spinal tap of Cytarabine chemo and a bone marrow aspirate to check […]

Cancer Dads - The Forgotten Half

Cancer Dads – The Forgotten Half

Hi all – Today Sally turned 2 1/2, a major milestone in her battle against MLL ALL Leukemia. It’s also my 36th birthday and I’d like to think that gives me the carte blanche to write a post about something that has been irking me for some time now. Yesterday on Facebook I saw several […]

Cast Off

Cast Off

Hi all – As you probably surmised from the title, Sally finally got her cast off this morning after having it on for 6 1/2 weeks. An X-ray showed that all 3 of her fractures have been healing nicely. Since the breaks have all occurred from simply standing on her leg, we’re obviously going to […]

Pushing Her

Pushing Her

Hi everybody – Overall, Sally has been doing quite well the last few weeks since our previous update when she broke her leg (again). She’s had a ton of energy, almost too much, to the point where it is difficult for her to settle. We think this is due to her activity being limited with […]

Another Broken Leg

Another Broken Leg

Hi all – On New Year’s Eve, Sally returned to the more intense chemo plan that she was on before the seizures she suffered in October. Our whole family spent the day at the hospital, getting there at the crack of dawn so Sally could undergo her spinal tap of chemo and have a bone […]