Cold
Hi all – just a quick update. Late last night Sally tested positive for a cold, which she could have gotten anywhere. She was promptly relocated to a private room next door and put in isolation. This means she can’t leave the room without a mask, and that all staff/doctors/visitors must wear a yellow gown, […]
Pneumatosis Intestinalis
Hi all – It was a very busy day for Sally and Mommy, I was at work so am relaying what I can from my conversations with Nicole. Sally has Pneumatosis Intestinalis, which is essentially gas trapped in her intestines. In Sally’s case, the gas is pushing her intestines up into her lungs causing a […]
2 Weeks In
Hi all – We are officially 14 days or two weeks into this hospital stay. Sally and Nicole took advantage of a quiet Sunday and slept in til 9am this morning. She’s doing well when on painkillers, which we now give her every four hours. Although its good to see Sally feeling well while on […]
Fever
Hi all – Sally’s morning started with a platelet transfusion that I alluded to her needing last night. A couple hours later she got a fever, which was somewhat expected to occur this weekend as her numbers bottom out. She received some Tylenol that kept it at bay most of the day, as well as […]
Visitors
Hi all – Sally and I had an up and down night. Although she spent most of the night in the crib, she didn’t sleep very soundly after the reaction I wrote about, almost as if she had a cup of coffee at midnight despite her exhaustion. I was also afraid of her having a […]
Another Reaction
Hi all – as I write this Sally is having another allergic reaction and rubbing her face furiously. They can’t give her the medicine that stopped it last time for another hour as she had received another dose earlier. So we’re just sitting here waiting, and can’t tell you how annoyed & irritated I am […]
Allergic Reaction
Hi all – While I wrote last night’s update, Sally was sleeping in the crib next to me, and could see a lot of movement. She wasn’t sleeping peacefully. Prior to that she was rubbing her eyes constantly, which usually just signals that she’s tired. It was a bit excessive, so did give the nurse […]
High Blood Pressure
Hi all – Nicole says Sally had a rough day. She received both a platelet and a blood transfusion today, sleeping through the latter. She was unhappy most of the day, also having unusually high blood pressure. Doctors think this is due to a combination of the steroids and that Sally is likely experiencing […]
Rolling Hills
Hi all – when I left MSK this morning, Sally had eaten a ton overnight and her Neutrophils (virus killing White Blood Cells) were above the .5 minimum number she needs for release. The doctor on duty (not a Leukemia specialist) over the weekend, the resident on call and nurses said we’d probably be able […]
Surprise Visitors
Hi all – Sally got some special surprise visitors today, my brother and mom dropped off the boys at the hospital so Nicole and I could get out and spend some time with them. Since we don’t as of yet have a new roommate, and Sally has been here for a week and could be […]