Mouth Sores – Part Deux
Hi All – Sally was overall in a much better mood the early part of today. She ate a big breakfast, played in her high chair for a good hour, and watched our roommates that we spent all week with pack up and leave. They were from Orlando and were really great, their son Cannon […]
Adjusting To Steroids
Hi all – right after I sent out last night’s update, Sally woke up in her crib and unable to ease her back to sleep, I took her into bed with me. For the next 3 hours, Sally showed me what the term ‘tossing and turning’ really means by literally rolling back and forth between […]
Beyonce
Hi all – I relieved Nicole this evening after work, she’d been here on the floor with Sally since Tuesday morning. As I was doing my usual laps around the floor with Sally I bumped into one our Leukemia doctors, Dr. Kobos, who is quickly becoming one of our favorites. I haven’t been able to […]
Neutropenic (Again)
Hi all – We got word this evening that Sally is once again neutropenic. As a refresher, this means that the virus fighting portion of her White Blood Cells (WBCs) are just about bottomed out, so she is at high risk for infection. As a result, she will need to remain in the hospital until […]
Base Camp
Hi all – As discussed yesterday, the first cycle of chemo put Sally into remission, and many have asked what this means. It does not mean Sally is cured and stops or changes her treatment. First off, the plan for Sally’s treatment of chemo over two years remains unchanged. Remission at this stage was anticipated […]
Remission
Hi all – just a quick note as Sally is sleeping and I hope to join her. Nicole admitted her this morning to start cycle 2 of chemo. Doctors told us the 2nd round would likely affect Sally faster and potentially a bit more intensely. After a day where she was mostly all smiles (and […]
Tutus and Family Day
Hi all – Below are some of the pictures from the triathlon this morning, I love the photo of my tutu in a sea of bikes. Before anybody says anything, yes, I know my tutu is a greenish yellow. Just chalk it up to false online advertising. I enjoyed the triathlon, over the last two […]
The Highs
Hi all – Sally is doing awesome, like awesome awesome. She was extremely playful and happy all day, tons of energy. She even stood with her godmother, Vittoria, for a long time and played at her little light & sound table. She would always scream when trying before, so it shows that she is still […]
Wired Little Girl
Hi all – I got to spend the day home alone with Sally, my first time since last Friday when she was becoming dehydrated and had to take her into Sloan Kettering for the entire weekend. She was very clingy most of the day, would cry any time I left her side except for the […]
Three Days of Peace (Hopefully)
Hi all – Got that photo mid-laugh when I arrived home, Nicole just remarked how she looks like a chipmunk with those massive cheeks. Sally had her big day of tests as well as another round of treatment today at Memorial Sloan-Kettering. She did very well, even sleeping through a plasma transfusion per Nicole. We […]