Hi all – just a quick note as Sally is sleeping and I hope to join her. Nicole admitted her this morning to start cycle 2 of chemo. Doctors told us the 2nd round would likely affect Sally faster and potentially a bit more intensely. After a day where she was mostly all smiles (and even some dancing) Sally developed a fever as I was holding her this evening. I literally felt her get warmer over the span of an hour while we walked around the floor. She went to sleep soon after and they gave her Tylenol and drew cultures. I have a feeling tonight may be a rough one, hence why I’m writing this and shutting my eyes.
The good news, Sally’s biopsy came back and she is in remission! The cancer and MLL are gone for now. I say for now as the odds of the cancer coming back are much higher in infants than older kids. If Sally was 3 or older, she’d have a 90% chance of being cancer free for good. Infants however can see it return any time over the first 18 months of treatment before the risk begins to subside. So essentially, we need to take this a month at a time. The good news is the treatment working this early on is a good sign and improves her odds.
That, is the best news we could have hoped for today. Please keep Sally in your thoughts and prayers.
Matt
That’s great news!!
Yay! Great news! She’s a tough little cookie! 🙂
Always a good day when we get to see Sally’s smiling face:-) I know it is not the guarantee we all crave but I am still happy she is in remission. Hoping this week isn’t too brutal and you get some sleep tonight.
That is fantastic news!!! Hahaaa, she showed you, STUPID CANCER!! GO ON!!! Little Sally sunshine is kicking butt!!! She is so strong!!! Here’s to hoping that her WBC’s jump back up and she’s back at home by this weekend!!! May God continue to look over her and your whole family! You’re all warriors!!!
OMgosh!!! This is great news!!! I’m sorry she’s not feeling well at the moment but hopefully she can gather the strength to get through this week and kick this sh*t to the curb!! I’m so, incredibly happy to hear this update!!
God Bless
AMEN
So glad to hear that! All those prayers are being heard!
Love to all,
Jeanine
Great news! So happy to hear! Thank God!
Thank the dear Lord…prayers do work.
I will continue to pray that Sweet Sally continues to be in remission and things go smoothly through this round of chemo. I have been following Sweet Sally since I saw the post on Lauren Murphy’s website to pray for her… what a sweet, precious baby girl you have. Prayers that you and Nicole continue your strength to get you through all this….
Kim
this is the first thing I read after waking up and I literally jumped off the bed with joy!
we will continue to keep her in our prayers.
Thank God! Hope you had a good night’s sleep.
Such a great result for her first step on your road to a healthy little nugget! Hopefully no more sad faces for a while and a lot more “da-da’s”
That is GREAT news!!!with the remission…hope the fever is just a response to the chemo….
Thank you for keeping us posted since I know you have so much on your plate
Say Hi to everyone
Sally
PS- like the pics of your running outfit