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Fresh Air

Fresh Air

Hi all – Sally went from drinking a couple ounces to drinking none all day today while I was with her and Nicole was at work. In the morning, one of the doctors wanted to send her home. At this point she was not drinking fluids, not eating, and throwing up her medication and were […]

Not Eating

Not Eating

Hi all – As discussed yesterday, Sally needed to eat well in order to get discharged. Unfortunately, that didn’t pan out. Sally normally eats 20+ oz of milk when she’s healthy, today she only had about 9, of that 5.5 before 9am. She refused the bottle all afternoon, as a result there is no way […]

Eat Sally, Eat!

Eat Sally, Eat!

Hi all – Sally is doing great, her blood counts and mood continues to improve. Today, the staff and Nicole worked to transfer all of her IV medications to their oral versions. This is the first step in us breaking her out of here. The medical staff thinks Sally should get out of here tomorrow, […]

A Happy Day

A Happy Day

Hi all – that’s how Nicole just described Sally’s day today, a happy day. She slept like a rock last night, literally, she was out cold the entire night and had the best sleep in probably weeks. This must have helped her body repair itself some and given her a lot of energy today. First […]

One a Year

One a Year

Hi all – typing this on my phone so going to be quick. Sally is doing ok. She had her 2nd X-ray today, doing an amazing job again, and results showed that the buildup of gas has lessened. Great news! Sally is getting some congestion in her lungs from the cold so is expected to […]

Cold

Hi all – just a quick update. Late last night Sally tested positive for a cold, which she could have gotten anywhere. She was promptly relocated to a private room next door and put in isolation. This means she can’t leave the room without a mask, and that all staff/doctors/visitors must wear a yellow gown, […]

Pneumatosis Intestinalis

Pneumatosis Intestinalis

Hi all – It was a very busy day for Sally and Mommy, I was at work so am relaying what I can from my conversations with Nicole. Sally has Pneumatosis Intestinalis, which is essentially gas trapped in her intestines. In Sally’s case, the gas is pushing her intestines up into her lungs causing a […]

2 Weeks In

2 Weeks In

Hi all – We are officially 14 days or two weeks into this hospital stay. Sally and Nicole took advantage of a quiet Sunday and slept in til 9am this morning. She’s doing well when on painkillers, which we now give her every four hours. Although its good to see Sally feeling well while on […]

Fever

Fever

Hi all – Sally’s morning started with a platelet transfusion that I alluded to her needing last night. A couple hours later she got a fever, which was somewhat expected to occur this weekend as her numbers bottom out. She received some Tylenol that kept it at bay most of the day, as well as […]

Visitors

Visitors

Hi all – Sally and I had an up and down night. Although she spent most of the night in the crib, she didn’t sleep very soundly after the reaction I wrote about, almost as if she had a cup of coffee at midnight despite her exhaustion. I was also afraid of her having a […]