Another Reaction
Hi all – as I write this Sally is having another allergic reaction and rubbing her face furiously. They can’t give her the medicine that stopped it last time for another hour as she had received another dose earlier. So we’re just sitting here waiting, and can’t tell you how annoyed & irritated I am […]
Allergic Reaction
Hi all – While I wrote last night’s update, Sally was sleeping in the crib next to me, and could see a lot of movement. She wasn’t sleeping peacefully. Prior to that she was rubbing her eyes constantly, which usually just signals that she’s tired. It was a bit excessive, so did give the nurse […]
High Blood Pressure
Hi all – Nicole says Sally had a rough day. She received both a platelet and a blood transfusion today, sleeping through the latter. She was unhappy most of the day, also having unusually high blood pressure. Doctors think this is due to a combination of the steroids and that Sally is likely experiencing […]
Rolling Hills
Hi all – when I left MSK this morning, Sally had eaten a ton overnight and her Neutrophils (virus killing White Blood Cells) were above the .5 minimum number she needs for release. The doctor on duty (not a Leukemia specialist) over the weekend, the resident on call and nurses said we’d probably be able […]
Surprise Visitors
Hi all – Sally got some special surprise visitors today, my brother and mom dropped off the boys at the hospital so Nicole and I could get out and spend some time with them. Since we don’t as of yet have a new roommate, and Sally has been here for a week and could be […]
Mouth Sores – Part Deux
Hi All – Sally was overall in a much better mood the early part of today. She ate a big breakfast, played in her high chair for a good hour, and watched our roommates that we spent all week with pack up and leave. They were from Orlando and were really great, their son Cannon […]
Adjusting To Steroids
Hi all – right after I sent out last night’s update, Sally woke up in her crib and unable to ease her back to sleep, I took her into bed with me. For the next 3 hours, Sally showed me what the term ‘tossing and turning’ really means by literally rolling back and forth between […]
Beyonce
Hi all – I relieved Nicole this evening after work, she’d been here on the floor with Sally since Tuesday morning. As I was doing my usual laps around the floor with Sally I bumped into one our Leukemia doctors, Dr. Kobos, who is quickly becoming one of our favorites. I haven’t been able to […]
Neutropenic (Again)
Hi all – We got word this evening that Sally is once again neutropenic. As a refresher, this means that the virus fighting portion of her White Blood Cells (WBCs) are just about bottomed out, so she is at high risk for infection. As a result, she will need to remain in the hospital until […]
Base Camp
Hi all – As discussed yesterday, the first cycle of chemo put Sally into remission, and many have asked what this means. It does not mean Sally is cured and stops or changes her treatment. First off, the plan for Sally’s treatment of chemo over two years remains unchanged. Remission at this stage was anticipated […]