Eat Sally, Eat!
Hi all – Sally is doing great, her blood counts and mood continues to improve. Today, the staff and Nicole worked to transfer all of her IV medications to their oral versions. This is the first step in us breaking her out of here. The medical staff thinks Sally should get out of here tomorrow, […]
A Happy Day
Hi all – that’s how Nicole just described Sally’s day today, a happy day. She slept like a rock last night, literally, she was out cold the entire night and had the best sleep in probably weeks. This must have helped her body repair itself some and given her a lot of energy today. First […]
One a Year
Hi all – typing this on my phone so going to be quick. Sally is doing ok. She had her 2nd X-ray today, doing an amazing job again, and results showed that the buildup of gas has lessened. Great news! Sally is getting some congestion in her lungs from the cold so is expected to […]
Cold
Hi all – just a quick update. Late last night Sally tested positive for a cold, which she could have gotten anywhere. She was promptly relocated to a private room next door and put in isolation. This means she can’t leave the room without a mask, and that all staff/doctors/visitors must wear a yellow gown, […]
Pneumatosis Intestinalis
Hi all – It was a very busy day for Sally and Mommy, I was at work so am relaying what I can from my conversations with Nicole. Sally has Pneumatosis Intestinalis, which is essentially gas trapped in her intestines. In Sally’s case, the gas is pushing her intestines up into her lungs causing a […]
2 Weeks In
Hi all – We are officially 14 days or two weeks into this hospital stay. Sally and Nicole took advantage of a quiet Sunday and slept in til 9am this morning. She’s doing well when on painkillers, which we now give her every four hours. Although its good to see Sally feeling well while on […]
Fever
Hi all – Sally’s morning started with a platelet transfusion that I alluded to her needing last night. A couple hours later she got a fever, which was somewhat expected to occur this weekend as her numbers bottom out. She received some Tylenol that kept it at bay most of the day, as well as […]
Visitors
Hi all – Sally and I had an up and down night. Although she spent most of the night in the crib, she didn’t sleep very soundly after the reaction I wrote about, almost as if she had a cup of coffee at midnight despite her exhaustion. I was also afraid of her having a […]
Another Reaction
Hi all – as I write this Sally is having another allergic reaction and rubbing her face furiously. They can’t give her the medicine that stopped it last time for another hour as she had received another dose earlier. So we’re just sitting here waiting, and can’t tell you how annoyed & irritated I am […]
Allergic Reaction
Hi all – While I wrote last night’s update, Sally was sleeping in the crib next to me, and could see a lot of movement. She wasn’t sleeping peacefully. Prior to that she was rubbing her eyes constantly, which usually just signals that she’s tired. It was a bit excessive, so did give the nurse […]