WBCs Roaring Back!
Hi all – I have a work function this evening so may not get a chance to send an update later. We received great news this morning, Sally’s White Blood Cells (WBCs) came roaring back, rising from .3 to 1.8, and her platelets from 9 way up to 57! After minimal growth and even some […]
6 Days Later
Hi all – its amazing how a very grumpy mood can wash away the second I arrive on the 9th floor here at MSK, and not only because I was going to get to spend the night with Sally. For those new to it, the pediatric in-patient floor can be a depressing and scary place. […]
Some Good News
Hi all – Sally and I shared the pullout chair bed last night, I just remember waking up at some point and having the arm of the chair digging into my back, my side sore, and a little girl shoved up against me. Have to say, there was nothing sweeter than waking up later on […]
Platelets and More Platelets
Hi all – Sally received yet another transfusion of platelets this morning, her third, as her counts for those were only at 10. So to review, she’s been 6, 7, 10 when she needs to get to well over 100. In addition, her WBCs are still sitting at .1, which needs to rise a lot […]
Leukemia for Dummies (like me)
Hi all – we say a lot of medical stuff in our posts, and while reading Thomas’ kids book on Cancer this morning I thought they did a better job of explaining it than I’ve seen anywhere on the internet. Anybody that has ever done a Google search on Leukemia knows its pretty overwhelming, so […]
Rough Start, Better Ending
Hi all – I got to the hospital around 7:30am so Nicole could get to work. When I arrived, I learned that Sally’s platelet level was still bottomed out at 7 (supposed to be around 150) so she had yet another transfusion. Nicole also remarked that she was very lethargic and after downing some food, […]
Transfusions and Mouth Sores
Hi all – our nurses came in at around midnight to take a blood sample from Sally. At 6am we were told that she needed to have platelet and blood transfusions that morning. A normal child’s platelet level is 150-200, hers dropped to 6 and her hemoglobin was at 7.0 which is the number you […]
Doing Better
Hi all – Got Sally asleep and I am going to try and join her, so a quick update: – Sally doing much better. She received antibiotics and fluids which have broken the fever. She is being given a very small dose of morphine every 4 hours to help with the pain she has due […]
Admitted
Hi all, We were with Sally at MSK until just after 1am, when doctors cleared her to leave as all tests came back negative and her blood counts were where they are expected to be. She also had a 9:30am appointment for chemo, so would get to see her primary care doctors then. We got […]
At MSK
Hi all – just a quick update. I expected to go to Costco tonight, but instead we are at MSK. Sally has had stomach issues since yesterday, and has had obvious discomfort. She does not have a fever, but has not been herself the last 2 days. Nicole called this in today and we were […]