Hi all – I have a work function this evening so may not get a chance to send an update later. We received great news this morning, Sally’s White Blood Cells (WBCs) came roaring back, rising from .3 to 1.8, and her platelets from 9 way up to 57! After minimal growth and even some falling numbers over the last week, this was a big and welcomed surprise. What we need now is for Sally’s neutrophils, which are the portion of the WBCs that fight off infections, to raise from 0.0 to 0.5, the minimum threshold for fighting off infection. She has none of these in her body now, but with her marrow starting to crank out WBCs, these can’t be far behind. MSK will not release any pediatric patient until they hit the 0.5 neutrophil benchmark. With yesterday’s growth, we can expect to see theses start showing up today if everything keeps improving.
Today’s mission is to get Sally ready for out-patient care again. They were taking her off the IV morphine and attempting to give her an oral version so Nicole and I would be able to deliver at home. Sally’s mouth/throat sores will take a couple days to heal once the neutrophils form, so she still needs this medicine in order to eat. Without the IV fluids she’s been receiving since we arrived, this will be extremely important as we need to keep her hydrated and well fed or could end up right back in the hospital. They were also going to re-order all of Sally’s home treatment meds, which take time. I think its actually good we have potentially a day or two to prepare so that we’re as comfortable as can be with taking care of her at home with these new challenges. She also has another round of treatment tomorrow morning, so would have had to come back for that anyways.
If everything keeps improving, we could be home by the weekend. Please keep your fingers crossed, avoid walking under ladders, and run from any black cats you see. Please also keep Sally in your thoughts and prayers. If anything else comes up, I’ll try to post to Sally’s Facebook page below.