Platelets and More Platelets


Hi all – Sally received yet another transfusion of platelets this morning, her third, as her counts for those were only at 10. So to review, she’s been 6, 7, 10 when she needs to get to well over 100. In addition, her WBCs are still sitting at .1, which needs to rise a lot to even consider getting out of here. This all points to Sally being here for quite a bit longer as her body just isn’t creating the blood cells she needs. We’re assuming that she’s going to need more platelets. Today’s platelets were actually donated directly to Sally, so must have been donated when we first sent the request for blood out a couple days ago. Thanks to whoever you are!

One interesting thing we learned today is that the usual timetables for treatment don’t apply to Sally due to her being an infant. For older kids, if the first cycle of treatment is successful and remission is achieved, it usually means the chemo plan will work. For Sally, she’s so young that even if this treatment works for the first cycle, she won’t have that same guarantee as her body is in such an early stage of growing. Something I think we both were aware of, but hadn’t digested, and one of the reasons having Leukemia at this age is more of a challenge to treat.

Other than that, a quiet day as we hoped, I added some pictures below. We had a visit from our friend AnnMarie (one of the planners of the fundraiser) which was a huge help. Sally also got a much needed bath, she was starting to smell like a drunken sailor. I am on duty tonight so Nicole can get home and see the boys. I’ll be going directly to work from here in the morning, a first for me, something I’ll obviously have to get used to.

People have been asking us how they can contribute to Sally’s treatment fund. We’re doing the fundraiser in September that we’ll send more details on, but know some can’t make it and still want to contribute. After speaking with our accountant (and other families and staff  here urging us to do this) we have opened up a new bank account solely for Sally’s treatment funds that we have to track and use carefully to be IRS compliant. We have also set up Contribution link through Paypal, its free if you use your Paypal account to send money, and a ~3% charge if you use a major credit card. Here is the link to the page, please note that all contributions are non tax-deductible:

This is all new to us, so let us know if you have any issues. Again, its mentally hard for us to accept help, but are told that this will all cost more than we expect.

C’mon WBCs! We need ya!

20130728_161925 2013072895162325

Please keep Sally in your thoughts and prayers.


7 Responses

  1. Joyce Blondo
    Joyce Blondo July 28, 2013 at 6:56 pm | | Reply

    She is in my thoughts and prayers, I pray for her every night, and ask God to heal her quickly.

  2. Iliana
    Iliana July 28, 2013 at 7:24 pm | | Reply

    Praying for her every day!

  3. demetra Mitsotakis Howard
    demetra Mitsotakis Howard July 28, 2013 at 8:39 pm | | Reply

    God Bless Your Entire Family And Your Beautiful Baby Girl.
    You Have Been And Will Be In My Family’s Prayers And Thoughts.

  4. Lalena Sarton
    Lalena Sarton July 28, 2013 at 9:06 pm | | Reply

    What a sweet little lady you have. I’m so sorry that you have to go through this. My daughter has had a kidney disease since she was 3 so I understand the heartache and the worry…and the prednisone (ugh). Nothing compared to what you’re dealing with though.

    Just wanted to let you know that I am here and listening and care about your family and can’t wait to hear that Sally is on the upswing!!

    I am also glad you are sharing ways that we can help you. We want to!

    Kisses and hugs and warm fuzzy thoughts. XXOO Lalena

  5. Margaret Martin
    Margaret Martin July 28, 2013 at 11:25 pm | | Reply

    Prayers continue for the plan for Sally to be a successful one! With hugs and hope, Margaret

  6. barb
    barb July 29, 2013 at 6:08 am | | Reply

    hey Matt and Nicole. The both of u and Sally are in my thoughts daily. she is the sweetest thing ever. I know she is a snuggler too as when you were here wwe did some of that. LOVE IT

  7. Marie
    Marie July 29, 2013 at 11:50 am | | Reply

    Always in our thoughts and prayers

Leave a Reply