Christmas at MSK
Hi Everybody, We confirmed on Friday that Sally will be having treatment on the 23rd, 24th and 25th (Christmas Day) of December. Although she’ll be able to come home every night, she will need to spend several hours at MSK each of those days. Emotionally we prepared for this situation and we are more than […]
Rectal Mucositis
Hi all – Nicole had to bring Sally into Memorial Sloan-Kettering last night. I received a call from her late yesterday afternoon that Sally was having hourly bowel movements, and the last few had blood in her stool. Her tushy was very raw, to the point where she would wince and scream in pain while […]
First Day Home
Hi all – As you know, we were able to bring Sally home around 6pm last night. We learned yesterday morning that her counts had skyrocketed over the previous 24 hours, so was well enough to leave. The only issue left was the pain she was in. Morphine works great for Sally through the IV, […]
Day 7 – Sally’s Home!
Hi all – just want to let you know Sally came home late this evening, the boys and I went to go pick her and Nicole up. Her counts shot way up yesterday, and we were given another painkiller to use as needed, which we’re trying to avoid as it may make her a bit […]
Day 6 – Bone Pain
Hi all – Good news and bad news. The bad news is that Sally had a rough day. She woke up and was whimpering and crying for quite some time, even when being held and walked around. That’s very unusual for her, when Nicole or I hold her she’ll typically calm down right away. This […]
Day 5 – Off Isolation
Hi all – I’m here with Sally at MSK tonight. Nicole went home to see the boys, her first time leaving the hospital since she arrived Monday morning. It is a much needed break for her and know the boys were looking forward to seeing their Mommy. She’ll head to work tomorrow for the day, […]
Thanksgiving Photos
Hi all – we just wanted to share a couple quick photos from yesterday. The boys and I arrived from Florida at 2pm, AnnMarie picked us up and took us home to Brooklyn so we could grab the car and head into Memorial Sloan-Kettering. I also thought to grab a bottle of wine and throw […]
Isolation Day 3 & Disney
Hi all – this is Nicole, I wrote the below last night but wasn’t able to send until now, so Happy Thanksgiving! Sweet Sally and I had a good day, first off, her marrow tests came back negative so she is still in remission, great news so Matt an I can breath for a few weeks […]
Day 2 in Isolation – by Mama
This is Nicole, I’m sending this update from my phone. Apologies for typos in advance. Sally slept very well and woke up playing peek a boo with her blanket. A good start to the day. Shortly after she was uncomfortable and was given morphine. She had morphine twice and round the clock anti nausea. It […]
Admitted Update
Hi all – as I wrote earlier, Sally was admitted this morning due to a fever and low blood counts, and is in isolation with a cold. I spoke to Nicole earlier, and we misunderstood Sally’s counts, her WBC is .3, her ABS is actually .0. Basically, she has no immune system. Her platelets are […]