Nicole

A Letter From a Childhood Cancer Survivor

A Letter From a Childhood Cancer Survivor

Hi everybody, It’s been a long time since I’ve written. As Sally’s Infant Leukemia treatment winds down, there is a message we received on Sally’s Facebook page a few months ago that a day hasn’t passed where I’ve thought about it. I’ve included it below, completely unedited, with Lauren’s permission: “I saw your post today […]

Mother's Day

Mother’s Day

Hi everyone – Mother’s Day morning was wonderful.  Most important we were all under one roof! The best present ever! The bonus, I was able to sleep in a bit and awoke to our ongoing tradition of breakfast in bed accompanied with plants and handmade presents. I read several posts, articles, and viewed photos of […]

Christmas at MSK

Christmas at MSK

Hi Everybody, We confirmed on Friday that Sally will be having treatment on the 23rd, 24th and 25th (Christmas Day) of December. Although she’ll be able to come home every night, she will need to spend several hours at MSK each of those days. Emotionally we prepared for this situation and we are more than […]

Isolation Day 3 & Disney

Hi all – this is Nicole, I wrote the below last night but wasn’t able to send until now, so Happy Thanksgiving! Sweet Sally and I had a good day, first off, her marrow tests came back negative so she is still in remission, great news so Matt an I can breath for a few weeks […]

Day 2 in Isolation - by Mama

Day 2 in Isolation – by Mama

This is Nicole, I’m sending this update from my phone. Apologies for typos in advance. Sally slept very well and woke up playing peek a boo with her blanket. A good start to the day. Shortly after she was uncomfortable and was given morphine. She had morphine twice and round the clock anti nausea. It […]

Busy Week by Mama

Busy Week by Mama

Hi Everybody, This is Nicole. Sally has done well post three days of chemo. Overall she has been active and even eating a little. The last three weeks I’ve been going to MSK on some of our days off for additional OT/PT. This past week, we’ve had a few breakthroughs and reached some milestones. Sally […]

Treatment Plan

Treatment Plan

Hi All, Matt worked late last night and isn’t feeling well. I’m going to do my best to do the update for yesterday and today. First off some positives. Sally’s counts have recovered.  The team would like to start the next step tomorrow instead of waiting the the full 28 days of this cycle which […]

A Lock From My Love

Hi all, Yesterday I noticed blonde strands on Sally’s shoulders. It was a rough day. The boys had left for school and camp. Matthew dropped them off and was on his way to work. I was home alone. Immediately after noticing  I grabbed a pair of scissors and cut a lock for keeping of her […]