Sally’s Back

Hi all – Sally’s back, and in more ways than one. First off, Sally is home! She was released this afternoon after chugging milk and eating for 24 hours straight without painkillers and minimal IV fluids. In addition to being back home, Sally is…well…back. She is smiling, laughing, clapping hands, holding herself up, eating a […]

Night & Day

Hi all – What a difference a day can make. By the time I left Sally with Nicole this evening, she had drank triple the amount of milk she had consumed the day before, and did so without any painkillers/morphine. This was likely a combination of being on IV fluids as well as her sores […]

Doing Better

Doing Better

Hi all – Sally slept well last night, she got up twice but managed to drink a bit from the bottle each time and get back to sleep. We both managed to sleep in til 8am, a rarity. Halfway through the night Sally joined me in the chair bed, which was quite cozy after plopping […]

Admitted. Again.

Hi all – very quickly for those not on Facebook, we had to bring Sally in after she wasn’t eating over a several hour period as she was either too tired or in a lot of pain. Dehydration is not something MSK messes with so they had us come in to be safe. A couple […]

Visible Chemo Effects

Visible Chemo Effects

Hi all – so we’re home, and if you can believe it, we have way more anxiety here with Sally than we do in the hospital. There is a lot of pressure on us to get enough fluids into Sally to keep her hydrated, otherwise we’ll have to bring her back into MSK. She finally […]

Freedom!

Freedom!

Hi all – quick update, we were able to bring Sally home today with a couple hiccups along the way. Her neutrophil count shot up from 0 to 1.6 yesterday, well past the 0.5 she needed, so her immune system is looking pretty strong right now all things considered. She was in some pain this […]

WBCs Roaring Back!

Hi all – I have a work function this evening so may not get a chance to send an update later. We received great news this morning, Sally’s White Blood Cells (WBCs) came roaring back, rising from .3 to 1.8, and her platelets from 9 way up to 57! After minimal growth and even some […]

6 Days Later

6 Days Later

Hi all – its amazing how a very grumpy mood can wash away the second I arrive on the 9th floor here at MSK, and not only because I was going to get to spend the night with Sally. For those new to it, the pediatric in-patient floor can be a depressing and scary place. […]

Some Good News

Hi all – Sally and I shared the pullout chair bed last night, I just remember waking up at some point and having the arm of the chair digging into my back, my side sore, and a little girl shoved up against me. Have to say, there was nothing sweeter than waking up later on […]

Platelets and More Platelets

Platelets and More Platelets

Hi all – Sally received yet another transfusion of platelets this morning, her third, as her counts for those were only at 10. So to review, she’s been 6, 7, 10 when she needs to get to well over 100. In addition, her WBCs are still sitting at .1, which needs to rise a lot […]