Katie Couric Show
Hi all – One of William’s teachers, Marie Sidoti, submitted Nicole’s name and story to the Katie Couric Show for a makeover. Turns out she was selected, and yesterday a camera crew came to our home and followed Nicole and her friend AnnMarie throughout an exiting evening. A private car whisked them to Manhattan where […]
Superstar Sally
Hi all – Sally had a good day, although not as much energy as yesterday. Nicole had to work, so I spent the day using the feeding tube to push milk into her manually. Sally threw up last night and this morning, so we took it slow and gradually increased over the day as her […]
Feeding Tube – Day 2
Hi all – Barely seeing Sally for a couple days, I was surprised at how well she is doing as I finally got to spend some time with her today both before and after work. She woke up early this morning, and Nicole was nice enough to take care of breakfast for the boys so […]
Feeding Tube
Hi all – Sally was back at MSK today for a spinal tap as well as a bone marrow biopsy to determine if she remains in remission. This is the point in the month where we’re holding our breath and have to usually wait a week or so for results. Doctors fully expect Sally to […]
HOME!!!
Hi all – we brought Sally home today around 5pm. When leaving, Sally received an applause from all of the nurses and Nicole and I were able to offer them our thanks, especially to those who cared for her over this three week stay at Memorial Sloan-Kettering. Sally is still refusing the bottle, so she […]
Fresh Air
Hi all – Sally went from drinking a couple ounces to drinking none all day today while I was with her and Nicole was at work. In the morning, one of the doctors wanted to send her home. At this point she was not drinking fluids, not eating, and throwing up her medication and were […]
Not Eating
Hi all – As discussed yesterday, Sally needed to eat well in order to get discharged. Unfortunately, that didn’t pan out. Sally normally eats 20+ oz of milk when she’s healthy, today she only had about 9, of that 5.5 before 9am. She refused the bottle all afternoon, as a result there is no way […]
Eat Sally, Eat!
Hi all – Sally is doing great, her blood counts and mood continues to improve. Today, the staff and Nicole worked to transfer all of her IV medications to their oral versions. This is the first step in us breaking her out of here. The medical staff thinks Sally should get out of here tomorrow, […]
A Happy Day
Hi all – that’s how Nicole just described Sally’s day today, a happy day. She slept like a rock last night, literally, she was out cold the entire night and had the best sleep in probably weeks. This must have helped her body repair itself some and given her a lot of energy today. First […]
One a Year
Hi all – typing this on my phone so going to be quick. Sally is doing ok. She had her 2nd X-ray today, doing an amazing job again, and results showed that the buildup of gas has lessened. Great news! Sally is getting some congestion in her lungs from the cold so is expected to […]