Year 2
Hi all – On July 15th, we hit our one year milestone of Sally’s treatment. Achieving remission was our first big milestone, getting Sally through her first year is the second one. This week we sat down with Dr. Steinherz, the senior doctor on Sally’s Leukemia Team, a man who has been treating not only […]
Cycle 8 & Celiac
Hi everybody – We realized we haven’t written in a few weeks, mostly because we’ve been getting Sally through the side effects of the chemo from Cycle 8. We had been told that we would be skipping the oral chemo that always knocks her counts down and sets off a chain reaction of side effects […]
Father’s Day
Hi all – Today is Father’s Day, I can’t tell you how happy it makes me to have all five of us home together, I am in a jovial mood today, Sally and I got out for a walk and Daddy/Sally coffee date yesterday. I’ve noticed more people giving her questioning looks, my first […]
A Year Gone By
Hi all – A year ago this morning, our lives began to change forever. Sally had been sick since the day before with a fever of 103, Nicole and I took turns staying up all night with her. By morning, she was limp and pale as a ghost. We agreed that Nicole would head into […]
Sally in the NY Daily News
Hi all – Sally was featured in a full page color article in this morning’s NY Daily News. We love the article as it brings attention to pediatric cancer, Memorial Sloan Kettering’s unique way of treating it and Infant Leukemia which receives very little press. You can read it by clicking here. Please keep Sally in […]
End of Cycle 7
Hi all – It’s been awhile since we last posted a blog update, there’s a lot to cover so we’re going to let some pictures below tell the story of what we’ve been up to. Overall, Sally did well with cycle seven, finishing up with three days of treatment this past week. This is our […]
Mother’s Day
Hi everyone – Mother’s Day morning was wonderful. Most important we were all under one roof! The best present ever! The bonus, I was able to sleep in a bit and awoke to our ongoing tradition of breakfast in bed accompanied with plants and handmade presents. I read several posts, articles, and viewed photos of […]
May
Hi all – It’s been two weeks since we’ve written, last time we were entering into the new cycle and concerned about what it would bring. Last Monday Sally had her intrathecal chemo, the one where they inject it directly into her spine. This is because chemo can’t get into the spine any other way, […]
Tired
Hello all – We haven’t written much lately as Sally has been doing quite well, typical of the weeks between cycles. The “voo-doo” of using yogurt and gamma globulins definitely helped with Sally’s digestion since our last update. She’s been able to tolerate more milk in her stomach with regular stools. We did have to […]
Video – Strolling Sally
Hi all – Sally starts Hell Week 2 of the cycle today and is on her way to Memorial Sloan Kettering as I type. We just wanted to quickly share this :38 second video taken over the weekend. As we’ve said before, all of the treatment Sally goes through has put her behind developmentally, and […]