Blog

Neutropenic (Again)

Hi all – We got word this evening that Sally is once again neutropenic. As a refresher, this means that the virus fighting portion of her White Blood Cells (WBCs) are just about bottomed out, so she is at high risk for infection. As a result, she will need to remain in the hospital until […]

Base Camp

Base Camp

Hi all – As discussed yesterday, the first cycle of chemo put Sally into remission, and many have asked what this means. It does not mean Sally is cured and stops or changes her treatment. First off, the plan for Sally’s treatment of chemo over two years remains unchanged. Remission at this stage was anticipated […]

Remission

Remission

Hi all – just a quick note as Sally is sleeping and I hope to join her. Nicole admitted her this morning to start cycle 2 of chemo. Doctors told us the 2nd round would likely affect Sally faster and potentially a bit more intensely. After a day where she was mostly all smiles (and […]

Tutus and Family Day

Tutus and Family Day

Hi all – Below are some of the pictures from the triathlon this morning, I love the photo of my tutu in a sea of bikes. Before anybody says anything, yes, I know my tutu is a greenish yellow. Just chalk it up to false online advertising. I enjoyed the triathlon, over the last two […]

The Highs

The Highs

Hi all – Sally is doing awesome, like awesome awesome. She was extremely playful and happy all day, tons of energy. She even stood with her godmother, Vittoria, for a long time and played at her little light & sound table. She would always scream when trying before, so it shows that she is still […]

Thank you for the bib Sister Virginia!

Wired Little Girl

Hi all – I got to spend the day home alone with Sally, my first time since last Friday when she was becoming dehydrated and had to take her into Sloan Kettering for the entire weekend. She was very clingy most of the day, would cry any time I left her side except for the […]

Three Days of Peace (Hopefully)

Three Days of Peace (Hopefully)

Hi all – Got that photo mid-laugh when I arrived home, Nicole just remarked how she looks like a chipmunk with those massive cheeks. Sally had her big day of tests as well as another round of treatment today at Memorial Sloan-Kettering. She did very well, even sleeping through a plasma transfusion per Nicole. We […]

24 Hour Freakout Is Over

24 Hour Freakout Is Over

Hi all – I just wanted to thank everybody for their kind words in the comments section of last night’s post as well as the texts and the emails of support I received over the last day. The first time Sally was diagnosed with Leukemia, I was a mess the whole first week, but it […]

Reality Sinking In

Reality Sinking In

Hi all – Sally had a checkup today that we hoped would be uneventful. Good news is that it was, her blood counts all looked good other than the need for a plasma transfusion, which she received before leaving. The stage is set for Thursday where Sally will undergo a spinal tap and bone marrow […]

Fundraiser for Sally

Hi all – Not much to update tonight, Sally had a good day home with Nicole. The only issue we’re having is that she is she has anxiety about being left alone, so didn’t sleep enough today and wouldn’t let Nicole leave her sight. This is understandable in that Sally is so used to having […]