Admitted

Hi all – Sally was scheduled to have chemo and start steroids today, however after a rough week Nicole noticed early this morning that she was very pale. She was also whimpering, even when being held so Nicole decided to head in early. Turns out that Sally’s blood levels are very low and she developed […]

Busy Weekend

Busy Weekend

Hi all – since our update on Thursday, we had quite the busy weekend. On Friday night, Nicole and I attended Hope Fest, a fundraiser for pediatric cancer right here in Brooklyn. It was put on by Frankie’s Mission, one of the non-profits that contributed to Sally’s fundraiser in October. They featured a video that […]

Cycle 4 - Maintenance 1

Cycle 4 – Maintenance 1

Hi all – This morning Sally kicked off her 4th cycle of treatment, she received a spinal tap with an injection of chemo into her spine like she has many times in the past. With the first two months being 30-day cycles, and the last one being 60-day, she is now in her 5th month […]

Busy Week by Mama

Busy Week by Mama

Hi Everybody, This is Nicole. Sally has done well post three days of chemo. Overall she has been active and even eating a little. The last three weeks I’ve been going to MSK on some of our days off for additional OT/PT. This past week, we’ve had a few breakthroughs and reached some milestones. Sally […]

Chemo Day 3

Chemo Day 3

Hi all – just a quick update. Sally was at Sloan-Kettering again today for her 3rd and final day of intense chemo this week. She did well, sleeping twice through treatment and being in an overall good mood. Her counts still looked good, so we hope for a hospital free weekend. Sally usually does fine […]

Halloween

Halloween

Hi all – sorry about sending the random picture earlier, was trying something new on my phone and thought I was just uploading it to the site. Happy so many of you enjoyed it! I’m going to use pictures with captions to walk you through our day… So we headed home, and Day 2 is […]

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Red Devil

Red Devil

Hi all – Sally began Hell Week 2 of her cycle today. She will receive three straight days of heavy chemo, although can come home each night. Sally has had these types of chemo before, but never grouped together at once like this. Independently she suffered side effects from these, including fevers, so Nicole and […]

Improvement

Improvement

Hi all – Nicole and I are about to try and head out to a local party in a bit. With adults only. A concept very foreign to us and is much needed after last weekend of hospital trips and a crazy week ahead. I just wanted to post a quick update as we haven’t […]

Fevers Coming and Going

Fevers Coming and Going

Hi all – Right about now, Nicole is arriving at Memorial Sloan-Kettering with Sally for what is probably a quick Sunday night visit. Sally has another fever, which adds to a weekend of ups and downs for our little girl. On Friday night, I came home from work to a tired and clingy Sally, and […]