Stresses Pre-Surgery
Hi all – Sally is scheduled to undergo a 2 hour surgery tomorrow morning at 7:30am to insert a permanent feeding tube into her stomach. Since tomorrow is also her birthday, and she’ll likely spend the day recovering, the folks at MSK celebrated it with her today. Scarlett and her mom Shannon surprised Sally […]
Back to Reality
Hi all – as I closed with last night, Nicole and I got a brief break this weekend, but now it was time to get back to reality. I’ve got a lot of photos today so am going to include as I write, so bear with me here. Speaking of the weekend, check out the […]
Katie Couric Show
Hi all – One of William’s teachers, Marie Sidoti, submitted Nicole’s name and story to the Katie Couric Show for a makeover. Turns out she was selected, and yesterday a camera crew came to our home and followed Nicole and her friend AnnMarie throughout an exiting evening. A private car whisked them to Manhattan where […]
Superstar Sally
Hi all – Sally had a good day, although not as much energy as yesterday. Nicole had to work, so I spent the day using the feeding tube to push milk into her manually. Sally threw up last night and this morning, so we took it slow and gradually increased over the day as her […]
Feeding Tube – Day 2
Hi all – Barely seeing Sally for a couple days, I was surprised at how well she is doing as I finally got to spend some time with her today both before and after work. She woke up early this morning, and Nicole was nice enough to take care of breakfast for the boys so […]
Feeding Tube
Hi all – Sally was back at MSK today for a spinal tap as well as a bone marrow biopsy to determine if she remains in remission. This is the point in the month where we’re holding our breath and have to usually wait a week or so for results. Doctors fully expect Sally to […]
Treatment Plan
Hi All, Matt worked late last night and isn’t feeling well. I’m going to do my best to do the update for yesterday and today. First off some positives. Sally’s counts have recovered. The team would like to start the next step tomorrow instead of waiting the the full 28 days of this cycle which […]
HOME!!!
Hi all – we brought Sally home today around 5pm. When leaving, Sally received an applause from all of the nurses and Nicole and I were able to offer them our thanks, especially to those who cared for her over this three week stay at Memorial Sloan-Kettering. Sally is still refusing the bottle, so she […]
Fresh Air
Hi all – Sally went from drinking a couple ounces to drinking none all day today while I was with her and Nicole was at work. In the morning, one of the doctors wanted to send her home. At this point she was not drinking fluids, not eating, and throwing up her medication and were […]
Not Eating
Hi all – As discussed yesterday, Sally needed to eat well in order to get discharged. Unfortunately, that didn’t pan out. Sally normally eats 20+ oz of milk when she’s healthy, today she only had about 9, of that 5.5 before 9am. She refused the bottle all afternoon, as a result there is no way […]