Dauno Week
Hi all – Things are finally starting to get back to “normal” at home. It was a long week for all of us as the stomach bug worked its way through our family, Thomas being the final victim. Only today are we all starting to eat normally again and having meals together. Sally went into […]
Throw Up
Hi all – I’m sorry for the title, I always try to pick 1-2 words that summarize the post and nothing else made sense for this one. Last night I was heading to bed after spending a couple hours with a smiling and very playful Sally, who also wanted to stay up til 10pm. I […]
Stomach Flu
Hi all – It was a crazy day, but Sally is home. In the middle of the night I came down with what can only be described as a stomach flu, I’ll spare you those details. I (barely) got the boys off to school and let Nicole know before collapsing on our bed, unable to […]
Lasix
Hi all – I just realized that an error occurred in our last blog update, and a draft was published instead of the correct final (longer and edited) version intended. The challenges of trying to send an update on a phone in a rush 🙂 We were admitted this afternoon and funny enough are sharing […]
Admitted for Super Bowl
Hi all – just a quick update. Sally is being admitted after spending the morning and afternoon in MSK’s Urgent Care. We brought her in very early this morning after having nausea and vomitting for 12 straight hours. Since being here, she has thrown up on both Nicole and I, and more strangely hasn’t peed […]
Rise of the Sunshine
Hi all – Sally had a very busy week, making three trips to Memorial Sloan Kettering for treatment. On Monday, we brought her in for her gamma globulin infusion. In last week’s update we told you how her antibody level was extremely low so she couldn’t fight off infections like the RSV. All went well, […]
Immunoglobulins
Hi all – first off, great news. We finally got the marrow test results back and Sally is still in remission! We’re relieved can stop holding our breath for the next few weeks until the next test. Nicole brought Sally in for a quick appointment today where she got a quick push of chemo. Your […]
Neutrophil Dance
Hi all – We took Sally into Memorial Sloan Kettering today, she had a PT appointment scheduled and we wanted to have her checked out by the team. For the last few days she hasn’t improved, she was up last night coughing and has been very mushy and sleepy. We decided all five of us […]
Brothers
Hi all – For the last week, our friends over at The Truth 365 have been highlighting siblings of children with cancer, as they sacrifice so much. Not only do they have to deal with less attention from their Mommy and Daddy, but they’re exposed to scary things that come with pediatric cancer. Today, our […]
Blonde Fuzz
Hi all – Sally was back at MSK today for some physical therapy and quick push of chemo. First off, her marrow tests are not back yet, although initial results looked good. We should have those back next week. She also is still testing positive for RSV, and are told she may for another 1-2 […]