Home!

Hi all – It was a crazy day, but Sally is home. In the middle of the night I came down with what can only be described as a stomach flu, I’ll spare you those details. I (barely) got the boys off to school and let Nicole know before collapsing on our bed, unable to sleep because I was freezing, achy and nauseous. A few hours later Nicole called me and told me she now had the symptoms as well.

We were always afraid of this happening, back when Sally was first diagnosed we vowed that one of us would always be at the hospital with her, we’d never leave her alone. If you’re sick, you’re not allowed on the In-Patient side so we had nobody else to help outside of Cindy, who lives well north of the city. There is nobody else who Sally is comfortable with that also knows how to care for her. Finally, Cindy sent me a text that she too was home sick with the same thing. Obviously we all caught it from Sally, but were now in a tough spot with all three of us being down.

Luckily, Sally was able to pretty much keep down her two previous feedings, so the hospital staff understanding our situation agreed to discharge her. If we weren’t sick, she’d still be admitted as she’s receiving the minimal amount of food and is barely hanging onto it. The last challenging piece of the puzzle was the snowstorm going on today in NYC. Nicole didn’t have the car and neither of us were feeling well enough to drive anyway. Luckily we had some volunteers and Uncle Jerry was able to head into the city in their 4 wheel drive SUV to grab the ladies.

Sally arrived home hooked up to a backpack containing IV Fluids, it was the only way we could get her discharged. They want to see her back at noon tomorrow to check on her, we still don’t know exactly what she has for some reason, but Nicole and I (as self appointed doctors) are making the educated decision that its a stomach flu or bug. Trust us, its one of those 🙂

Sally with Mr. IV Backpack which is giving her a continuous flow of fluids through her central line.

In addition to being sick, Nicole and I are on virtually no sleep over the last three days, her worse than me. Hopefully all of us will start to get over this soon as we’re totally shot and exhausted. I’ve been fortunate enough to feel a touch better than this morning, but Nicole hasn’t been so fortunate.

Thomas and William were so excited to have their sister home, they both made her Get Well cards totally on their own.

William was especially excited, giving Sally a lot of hugs. The feeling is mutual as she has barely taken her eyes off of him since she got home. We love the special bond those two have.

Our friend Meredith dropped off some needed supplies at the hospital and the good folks over at Bay Ridge Cares dropped by a stomach flu package for us, which we’re already tapping into.

Finally, I kept seeing this on the desk in the Urgent Care Center yesterday and couldn’t stop thinking how badly we want our Trouble back. As I type this she’s on the floor playing and smiling up at us, so looks to be going back that way. Please keep Sally in your thoughts and prayers.

Matt