Just a very quick update, I’m on about 5 hours combined sleep the last two nights and my bed is calling me. Sally had another good day, although a bit less energy than on Tuesday and not much of an appetite. We also noticed her putting on some weight, and after weighing her realized she is retaining some fluids, much like the last time. Doctors will keep an eye on this for us, as this spun out of control when we saw these signs a few weeks ago.
Sally received 2 other forms of chemo today, actually much faster in delivery than the previous two days. Our big challenge now is that she needs to take steroids 3x a day, however they have to be orally taken. Sally is not a fan of this (and hasn’t been) so threw up the medicine and little food she ate each time they tried. Having to get the medicine in her, they resorted to giving via IV, however considering she needs to take this for a couple weeks, this is something Nicole and I can’t do at home. Therefore, until we can get her to take the steroids, the hospital cannot discharge her. This will likely prevent Sally from being discharged tomorrow as hoped.
Another tidbit we learned is after being discharged, if Sally has to be re-admitted for anything, she will have to stay in until the end of the initial treatment. In other words, she could be released Friday, have to come back in Monday with a low grade fever and stay in the hospital for another 1-2 weeks. This is quite common in the early months of treatment.
I head back to work tomorrow, where my employer has been very gracious in letting me be there with Sally at the start of this journey, Nicole and I now have the tough task of re-shaping our lives to get Sally’s treatment, the boys, and our jobs the attention each needs.
Please keep our family in your thoughts and prayers, especially Sweet Sally Sunshine.