Mental Marathon
Hi all – Sally has been much more herself since Saturday, filling our home with smiles and laughter. Unfortunately she is still having the occasional pain fits, although not as intense as when she was in the hospital. She is understandably a bit traumatized from last week’s hospital stay, being upset and needy at times. […]
Home
Hi all – just a quick update. Sally got home Thursday night, it was a hectic couple hours as she was miserable from the seven days of steroids and the boys weren’t happy to be sharing Nicole’s attention with her after not seeing their Mommy for five days. Luckily we tested some Benadryl and that […]
MRI & Birthday
Hi all – We’ve had a busy two days of tests for Sally trying to get to the bottom of what’s going on. Apparently our “Anger” blog post from Sunday night caused a stir among the staff at MSK. Visitors to Sally’s room referenced it and we had a lot of doctors in to see […]
Anger
Hi all – You know that scene in The Godfather when Sonny gets the call from his sister, and he gets angry, slams down the phone and storms out in the car? Yeah, that was me today when I received a call from Nicole telling me that the medical staff had no intention of giving […]
Pain Fits
Hi all – well, first the good news. Sally hasn’t thrown up in two days. Nicole feels that Sally’s vomiting is tied directly to her counts dropping. Now that they appear to be on their way up, the vomiting has stopped. Well, all her counts but her platelets, which are being stubborn. Sally slept most […]
Admitted – The Morning After
Hi all – We wanted to provide an update as many are reaching out, which we’re happy to have all of the support. We’re reading all messages, if we don’t reply it’s just because we’re focused on Sally and the boys. As I mentioned in the last post, Sally has been having digestive issues and […]
Admitted – Counts & Digestive Issues
Hi all – I was about to hit send on an update while my office computer was being worked on, but just received a call from Nicole saying that Sally is being admitted. We brought Sally in yesterday for her scheduled chemo, which was delayed from Monday due to her unexpected low counts and vomiting. […]
Minor Delay
Hi all – On Thursday we started Sally’s sixth cycle of treatment with intrathecal methotrexate in her spine and a bone marrow biopsy. That night we also started four days of her oral chemo. Two cycles ago we gave her three pills of chemo (broken up and pushed through her feeding tube) each night […]
Cycle 6 – Sassy Sally Tantrum
Hi all – First off, there’s a young boy named Aidan, who has never met Sally but follows her story with his family, that is shaving his head to raise money for pediatric cancer research in honor of Sally. He’s very close to his goal of $1,000. If anybody would like to donate to help […]
Snowstorms & Valentines
Hi all – As expected it was a long week, hence why we refer to this period in Sally’s cycle as Hell Week 2. On Wednesday we brought her in for the first of three days of chemo, the first two of which are the daunorubicin. Dauno is part of the anthracycline family of chemos, […]