Cycle 8 & Celiac
Hi everybody – We realized we haven’t written in a few weeks, mostly because we’ve been getting Sally through the side effects of the chemo from Cycle 8. We had been told that we would be skipping the oral chemo that always knocks her counts down and sets off a chain reaction of side effects […]
Father’s Day
Hi all – Today is Father’s Day, I can’t tell you how happy it makes me to have all five of us home together, I am in a jovial mood today, Sally and I got out for a walk and Daddy/Sally coffee date yesterday. I’ve noticed more people giving her questioning looks, my first […]
A Year Gone By
Hi all – A year ago this morning, our lives began to change forever. Sally had been sick since the day before with a fever of 103, Nicole and I took turns staying up all night with her. By morning, she was limp and pale as a ghost. We agreed that Nicole would head into […]
Sally in the NY Daily News
Hi all – Sally was featured in a full page color article in this morning’s NY Daily News. We love the article as it brings attention to pediatric cancer, Memorial Sloan Kettering’s unique way of treating it and Infant Leukemia which receives very little press. You can read it by clicking here. Please keep Sally in […]
End of Cycle 7
Hi all – It’s been awhile since we last posted a blog update, there’s a lot to cover so we’re going to let some pictures below tell the story of what we’ve been up to. Overall, Sally did well with cycle seven, finishing up with three days of treatment this past week. This is our […]
May
Hi all – It’s been two weeks since we’ve written, last time we were entering into the new cycle and concerned about what it would bring. Last Monday Sally had her intrathecal chemo, the one where they inject it directly into her spine. This is because chemo can’t get into the spine any other way, […]
Tired
Hello all – We haven’t written much lately as Sally has been doing quite well, typical of the weeks between cycles. The “voo-doo” of using yogurt and gamma globulins definitely helped with Sally’s digestion since our last update. She’s been able to tolerate more milk in her stomach with regular stools. We did have to […]
Video – Strolling Sally
Hi all – Sally starts Hell Week 2 of the cycle today and is on her way to Memorial Sloan Kettering as I type. We just wanted to quickly share this :38 second video taken over the weekend. As we’ve said before, all of the treatment Sally goes through has put her behind developmentally, and […]
Voodoo
Hi all – If you remember last week, Sally was on Mr. IV Backpack as she was nauseous and still had diarrhea. When we say diarrhea, we’re talking 12-18 poops a day, constantly changing her. She also had a terrible diaper rash and yeast infection, so changes were quite painful for Sally. On Saturday she […]
Delays
Hi all – we realized we haven’t written in almost two weeks, although we’ve been posting updates to Sally’s Facebook page. Last week, Sally’s treatment had to be delayed due to low counts and lingering effects from the challenges she faced while admitted. The Team was unclear why her counts were low, another thing to […]