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Hello all – It’s been a very difficult six weeks for our family as we try to navigate these new waters without our little girl. I’ll share a bit more below but we wanted to invite you to attend Sally’s funeral mass and Celebration of Life that will be held in Bay Ridge on Saturday, […]
“She’s gone.” Those were the words spoken by the head ICU doctor at NYU Langone at 2:01pm on September 19th, 2018 after listening for Sally’s heartbeat for over a full minute. There was no heartbeat, we had lost her. We did everything we could. The doctors, nurses and medical staff did everything they could. It […]
Hello all – We had sworn we’d done a more recent update, but our last one was about our Make-A-Wish trip back in February. We had a very busy spring between school, recitals, lacrosse, graduations, moving up ceremonies and the sort. The good news is that while Sally struggled to adjust at school during the […]
Hello all – Over Christmas, we finally got to take Sally on her Make-A-Wish trip. Most families like to do a Disney-type trip, but that wouldn’t be right for our family, especially with Sally’s epilepsy and it wouldn’t have been fun for her. Sally isn’t cognitively able to make a wish, so we took what […]