Tired
Hello all – We haven’t written much lately as Sally has been doing quite well, typical of the weeks between cycles. The “voo-doo” of using yogurt and gamma globulins definitely helped with Sally’s digestion since our last update. She’s been able to tolerate more milk in her stomach with regular stools. We did have to […]
Video – Strolling Sally
Hi all – Sally starts Hell Week 2 of the cycle today and is on her way to Memorial Sloan Kettering as I type. We just wanted to quickly share this :38 second video taken over the weekend. As we’ve said before, all of the treatment Sally goes through has put her behind developmentally, and […]
Voodoo
Hi all – If you remember last week, Sally was on Mr. IV Backpack as she was nauseous and still had diarrhea. When we say diarrhea, we’re talking 12-18 poops a day, constantly changing her. She also had a terrible diaper rash and yeast infection, so changes were quite painful for Sally. On Saturday she […]
Delays
Hi all – we realized we haven’t written in almost two weeks, although we’ve been posting updates to Sally’s Facebook page. Last week, Sally’s treatment had to be delayed due to low counts and lingering effects from the challenges she faced while admitted. The Team was unclear why her counts were low, another thing to […]
Mental Marathon
Hi all – Sally has been much more herself since Saturday, filling our home with smiles and laughter. Unfortunately she is still having the occasional pain fits, although not as intense as when she was in the hospital. She is understandably a bit traumatized from last week’s hospital stay, being upset and needy at times. […]
Home
Hi all – just a quick update. Sally got home Thursday night, it was a hectic couple hours as she was miserable from the seven days of steroids and the boys weren’t happy to be sharing Nicole’s attention with her after not seeing their Mommy for five days. Luckily we tested some Benadryl and that […]
MRI & Birthday
Hi all – We’ve had a busy two days of tests for Sally trying to get to the bottom of what’s going on. Apparently our “Anger” blog post from Sunday night caused a stir among the staff at MSK. Visitors to Sally’s room referenced it and we had a lot of doctors in to see […]
Anger
Hi all – You know that scene in The Godfather when Sonny gets the call from his sister, and he gets angry, slams down the phone and storms out in the car? Yeah, that was me today when I received a call from Nicole telling me that the medical staff had no intention of giving […]
Pain Fits
Hi all – well, first the good news. Sally hasn’t thrown up in two days. Nicole feels that Sally’s vomiting is tied directly to her counts dropping. Now that they appear to be on their way up, the vomiting has stopped. Well, all her counts but her platelets, which are being stubborn. Sally slept most […]
Admitted – The Morning After
Hi all – We wanted to provide an update as many are reaching out, which we’re happy to have all of the support. We’re reading all messages, if we don’t reply it’s just because we’re focused on Sally and the boys. As I mentioned in the last post, Sally has been having digestive issues and […]