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Delays

Delays

Hi all – we realized we haven’t written in almost two weeks, although we’ve been posting updates to Sally’s Facebook page. Last week, Sally’s treatment had to be delayed due to low counts and lingering effects from the challenges she faced while admitted. The Team was unclear why her counts were low, another thing to […]

Mental Marathon

Mental Marathon

Hi all – Sally has been much more herself since Saturday, filling our home with smiles and laughter. Unfortunately she is still having the occasional pain fits, although not as intense as when she was in the hospital. She is understandably a bit traumatized from last week’s hospital stay, being upset and needy at times. […]

Home

Home

Hi all – just a quick update. Sally got home Thursday night, it was a hectic couple hours as she was miserable from the seven days of steroids and the boys weren’t happy to be sharing Nicole’s attention with her after not seeing their Mommy for five days. Luckily we tested some Benadryl and that […]

MRI & Birthday

MRI & Birthday

Hi all – We’ve had a busy two days of tests for Sally trying to get to the bottom of what’s going on. Apparently our “Anger” blog post from Sunday night caused a stir among the staff at MSK. Visitors to Sally’s room referenced it and we had a lot of doctors in to see […]

Anger

Anger

Hi all – You know that scene in The Godfather when Sonny gets the call from his sister, and he gets angry, slams down the phone and storms out in the car? Yeah, that was me today when I received a call from Nicole telling me that the medical staff had no intention of giving […]

Pain Fits

Pain Fits

Hi all – well, first the good news. Sally hasn’t thrown up in two days. Nicole feels that Sally’s vomiting is tied directly to her counts dropping. Now that they appear to be on their way up, the vomiting has stopped. Well, all her counts but her platelets, which are being stubborn. Sally slept most […]

Admitted - The Morning After

Admitted – The Morning After

Hi all – We wanted to provide an update as many are reaching out, which we’re happy to have all of the support. We’re reading all messages, if we don’t reply it’s just because we’re focused on Sally and the boys. As I mentioned in the last post, Sally has been having digestive issues and […]

Admitted - Counts & Digestive Issues

Admitted – Counts & Digestive Issues

Hi all – I was about to hit send on an update while my office computer was being worked on, but just received a call from Nicole saying that Sally is being admitted. We brought Sally in yesterday for her scheduled chemo, which was delayed from Monday due to her unexpected low counts and vomiting. […]

Minor Delay

Minor Delay

  Hi all – On Thursday we started Sally’s sixth cycle of treatment with intrathecal  methotrexate in her spine and a bone marrow biopsy. That night we also started four days of her oral chemo. Two cycles ago we gave her three pills of chemo (broken up and pushed through her feeding tube) each night […]